This starter pack brings together practical information, appointment tools, and Canadian support resources to help you take the next steps — a few manageable things at a time.
Every centre organizes care a little differently. These sheets are a place to record what your team tells you — they are not a promise that every centre works the same way.
Worksheets and downloads
Everything in the starter pack is on this page — you never have to download anything to get the help. The sheets below are here to print or save, with room to write.
From the Canadian Cancer Society
Questions to Ask When You Have Cancer
A booklet of questions to ask your healthcare team, with space to write down the answers and information you receive.
A single printable PDF of the whole starter pack is in preparation. When it is ready, it will be added here — the same information will always stay on this page.
Prepare for your next appointment
Take this list with you, on paper or on your phone. You do not need to ask everything at once — start with what matters most to you.
Questions to take to your doctor
What type of pancreatic cancer do I have, and what stage is it?
Has my case been discussed by a multidisciplinary team?
Has my tumour been sent for biomarker testing? Will I be offered inherited (germline) genetic testing? When will results be back?
Are there clinical trials for me — here or elsewhere in Canada — that I should consider before treatment starts?
Would you support a second opinion at a specialized centre? Can you send my records?
If surgery is an option, where would it be done, and how often does that team perform it?
Who do I call between appointments, and for what?
What help is available for travel costs and time off work?
Two more things worth doing: bring a support person if you wish, and ask how to obtain copies of your reports. Your records are yours.
Care-team contact sheet
Fill this in with your care team at your next appointment or call.
Main clinic or care team
Daytime phone
After-hours number or instructions
Who to contact about worsening symptoms
Who is coordinating my referrals
Next appointment — date and place
My pharmacy
Medication and supplement list
Keep this current and bring it to appointments. Include prescriptions, over-the-counter products, vitamins, and supplements.
Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Questions for my team about medications
Finding a pancreatic cancer specialist team
Pancreatic cancer care involves specialist services — surgery, medical oncology, radiation oncology, and multidisciplinary assessment. Some provinces formally designate centres for pancreatic (hepato-pancreato-biliary, or HPB) surgery; Ontario's designated centres, for example, are listed by Cancer Care Ontario.
If surgery is a possibility, it is reasonable to ask where it would be done and how often that team performs it — and to ask about a referral or another opinion if you want one. Your provincial guide lists the services and referral routes where you live.
Five short routes into the guides on this site. Open them in any order, at your own pace — each starts with the question it helps you discuss with your team.
Understanding the diagnosis
What type of pancreatic cancer do I have? What do the scan and pathology results tell us?
A conversation to have with your team — not something every patient needs at the same time.
Want someone to help you work through the information?
Craig's Cause — Pancreatic Cancer Guide™
Book a free virtual appointment with a nurse to ask questions, understand your options, and find programs that support people affected by pancreatic cancer. Appointments are 15 or 30 minutes, booked through the Craig's Cause website.
For peer conversation with other Canadians, the Foundation moderates r/CanPancreaticCancer on Reddit — a discussion community, separate from professional navigation or clinical advice.
Worried about costs?
Explore income benefits, travel assistance, and patient-support programs.
In Atlantic Canada, the Foundation's Port to Care program provides $500 grants toward travel for pancreatic cancer care. Applications are open. About Port to Care →
Supporting someone who has been diagnosed?
Find practical information and support for your own needs as a caregiver or family member.
Ask your care team for written instructions about urgent symptoms and after-hours help. Do not wait for a website response if someone needs urgent medical assessment.