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Newly diagnosed with pancreatic cancer?

You do not have to understand everything today.

This starter pack brings together practical information, appointment tools, and Canadian support resources to help you take the next steps — a few manageable things at a time.

Three manageable next steps

Not a schedule, and not homework. These three things help most people feel oriented in the first days, whenever you are ready.

Understand what is known — and what is still being checked

A diagnosis is confirmed in stages, and some results take time. It helps to keep a simple record:

  • Your exact diagnosis, if it has been confirmed.
  • Which results you already have.
  • Which tests or appointments are still to come.
  • Who will explain the next steps to you.

Prepare for the next appointment

Appointments carry a lot of information at once. Writing questions down ahead of time helps, and most teams welcome it.

  • Use the question sheet further down this page.
  • Bring a support person if you wish — another set of ears helps.
  • Ask how to get copies of your reports and results.

Go to the question sheet →

Know whom to contact

Ask your care team for the contact details that matter day to day, and keep them in one place:

  • Your main clinic contact.
  • Daytime and after-hours numbers.
  • Who to call about worsening symptoms.
  • Who is coordinating your referrals.

Open the contact sheet →

Every centre organizes care a little differently. These sheets are a place to record what your team tells you — they are not a promise that every centre works the same way.

Worksheets and downloads

Everything in the starter pack is on this page — you never have to download anything to get the help. The sheets below are here to print or save, with room to write.

From the Canadian Cancer Society

Questions to Ask When You Have Cancer

A booklet of questions to ask your healthcare team, with space to write down the answers and information you receive.

Canadian Cancer Society · English · PDF, 20 pages

Get it from the Canadian Cancer Society →

Starter pack sheet

Appointment preparation sheet

The key questions to take to your doctor, with space for notes, decisions, and next steps.

Use it on this page ↓

Starter pack sheet

Care-team contact sheet

One place for your clinic contacts, phone numbers, and upcoming appointments.

Use it on this page ↓

Starter pack sheet

Medication and supplement list

Record what you take — prescriptions, over-the-counter products, and supplements — and questions to raise with your team.

Use it on this page ↓

A single printable PDF of the whole starter pack is in preparation. When it is ready, it will be added here — the same information will always stay on this page.

Prepare for your next appointment

Take this list with you, on paper or on your phone. You do not need to ask everything at once — start with what matters most to you.

Questions to take to your doctor

  • What type of pancreatic cancer do I have, and what stage is it?
  • Has my case been discussed by a multidisciplinary team?
  • Has my tumour been sent for biomarker testing? Will I be offered inherited (germline) genetic testing? When will results be back?
  • Are there clinical trials for me — here or elsewhere in Canada — that I should consider before treatment starts?
  • Would you support a second opinion at a specialized centre? Can you send my records?
  • If surgery is an option, where would it be done, and how often does that team perform it?
  • Who do I call between appointments, and for what?
  • What help is available for travel costs and time off work?

Two more things worth doing: bring a support person if you wish, and ask how to obtain copies of your reports. Your records are yours.

Care-team contact sheet

Fill this in with your care team at your next appointment or call.

Main clinic or care team
Daytime phone
After-hours number or instructions
Who to contact about worsening symptoms
Who is coordinating my referrals
Next appointment — date and place
My pharmacy

Medication and supplement list

Keep this current and bring it to appointments. Include prescriptions, over-the-counter products, vitamins, and supplements.

Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Name — what it is for — dose and when I take it
Questions for my team about medications

Finding a pancreatic cancer specialist team

Pancreatic cancer care involves specialist services — surgery, medical oncology, radiation oncology, and multidisciplinary assessment. Some provinces formally designate centres for pancreatic (hepato-pancreato-biliary, or HPB) surgery; Ontario's designated centres, for example, are listed by Cancer Care Ontario.

If surgery is a possibility, it is reasonable to ask where it would be done and how often that team performs it — and to ask about a referral or another opinion if you want one. Your provincial guide lists the services and referral routes where you live.

Key questions, when you're ready

Five short routes into the guides on this site. Open them in any order, at your own pace — each starts with the question it helps you discuss with your team.

Understanding treatment

What is the goal of treatment, and which options are appropriate to discuss?

Asking about testing

Have tumour biomarker testing and inherited genetic testing been considered?

These are two different kinds of testing — one examines the tumour, the other looks for inherited risk. They are not interchangeable.

Want someone to help you work through the information?

Craig's Cause — Pancreatic Cancer Guide™

Book a free virtual appointment with a nurse to ask questions, understand your options, and find programs that support people affected by pancreatic cancer. Appointments are 15 or 30 minutes, booked through the Craig's Cause website.

Book or learn more at Craig's Cause →

Canadian Cancer Society — Cancer Information Helpline

Talk to an information specialist who can help you find cancer information and support resources in your community.

Call 1-888-939-3333 or visit cancer.ca →

For peer conversation with other Canadians, the Foundation moderates r/CanPancreaticCancer on Reddit — a discussion community, separate from professional navigation or clinical advice.

Worried about costs?

Explore income benefits, travel assistance, and patient-support programs.

Financial support →

In Atlantic Canada, the Foundation's Port to Care program provides $500 grants toward travel for pancreatic cancer care. Applications are open. About Port to Care →

Supporting someone who has been diagnosed?

Find practical information and support for your own needs as a caregiver or family member.

Caregivers Hub →

If symptoms are worsening

Ask your care team for written instructions about urgent symptoms and after-hours help. Do not wait for a website response if someone needs urgent medical assessment.

When you're ready, you can also read about the Foundation's research and advocacy work — there is no rush, and nothing there is needed for your care today.

Last reviewed: October 24, 2026 · Sources: Canadian Cancer Society; Craig's Cause Pancreatic Cancer Society; Cancer Care Ontario · Spotted an error? Tell us

This page is general information to support your conversations with your care team. It is not medical advice and does not replace their guidance.

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